Hemophilia is a bleeding disorder in which the blood does not clot normally. Some people with hemophilia may develop inhibitors to clotting replacement therapy, making their condition more difficult to treat. There is no surgical treatment for hemophilia. However, bleeding into the joints may cause permanent joint damage leading to a greater need for elective orthopedic surgery. This surgery may significantly decrease pain and the number of bleeds, as well as potentially improving quality of life, but it was rarely performed in individuals with inhibitors in the past. Although there is a risk with any surgical procedure, there are now bypassing treatments that make surgery an option for people with hemophilia A or B with inhibitors. This site has been made possible with the help of Amy D. Shapiro, MD, Thomas C. Hofstra, MD, Edward Hellman, MD, and Stacie Akins, a Physical Therapist. See Resources Section for biographies.

HEMOPHILIA & JOINT HEALTH SURGERY       Find out more about hemophilia and joint health, including preventing and managing joint bleeds. Learn how joint damage occurs, and watch an animated video on the process. Listen to a hematologist talk about the condition. Download exercises.   Learn about the benefits and risks of surgery as well as key aspects of what happens before, during and after surgery, including physical therapy. You’ll find insights from hematologists and true experiences from real patients who have undergone surgery.

INSURANCE RESOURCES       Important information about health insurance is covered here. You’ll find questions for your provider, and other important insurance considerations.   Access a comprehensive list of resources for additional information about hemophilia, hemophilia A or B with inhibitors, surgery, and treatment centers near you.